October 23, 2011

Uncle Jeff

Some things are just so very special that there aren't words.
That would be what this relationship is.  I kept putting off posting, because I couldn't find words to describe.....  sooo, instead....... Nevin posted.  :)  
Who needs words?  Pictures are worth 1000.

Nevin has a new post on his photoblog.  

October 21, 2011

October is Down Syndrome Awareness month!

We want to support all those that rock that extra chromosome with a blog hop on the 21st! 
p.s. adding that.... I don't exactly know what I'm doing, but hope to make some new bloggin' friends!   join me on my first blog hop!  :)

October 12, 2011

New iPad & Double Trouble!! :)

So Nevin finally got his new iPad.  Actually, he and I are sharing.  But today was the first day, so it was his today.   I didn't put many apps on it yet, but he still was very excited to check it out.  This evening I sat down with it to do my own playing...... and when I opened it up.   This is what I saw!!  
I'm not sure how he did it, but even by himself with a new iPad.... 
 he is Livin' Life BIG!!  

October 10, 2011

Buddy WALK!!

We had absolutely beautiful weather!!   and had a great time.   Nevin was a "star".... and announced to the whole crowd that now that he is 21 he can drink beer! (thank you Erin, for that little "prompt" :)   I tried to post the video, but it must be too big to post on blogger..... cause it keeps giving me error messages.  So you're gonna have to settle for just pictures ;)

 Boys!!  we're supposed to be setting up!!
Ta Daa!!  our table
and our special guests!!  
The DeLlanos family.  
Timothy has been HOME for almost a year now.
I love this picture....  Nevin got to draw the name of who won the iPad2 raffle.

I love both these boys!!
Nevin is 21 and Daniel is 1.  :)

and my very special friend, Isabel came to share our day, too.

What a wonderful day to celebrate with people who "get it"!!
People who understand the blessing of that extra chromosome.  :)

October 6, 2011

Nevin's Card !!

We ordered some business cards to give out at the Buddy walk primarily so that they could order bumper stickers or other "future"  Live Life BIG  items "hint hint" :)  and maybe some give-aways.
Oh, my.....you should have seen Nevin's face when we picked them up. 
 He definitely felt important!! 
I'm thinking you better come to the buddy walk so he can give you one of his cards!!

October 5, 2011

The Blog.....

oh, my goodness....... all I needed to do was figure out how to add tabs!  My friend, Amy, gave me a short tutorial..... so I felt ready to tackle it.    And before I knew it...... I had completely lost my old template and was deep in a "re-design" whether I wanted to do it or not!!
  Whew,  then finally...... I have tabs......  clicked on Nevin's photoblog tab..... and realized that this week they have done a huge change in formatting there!  yikes....  at first I thought I had somehow messed it up, too.
   So for now,  I have tabs.   and a new color and a new picture..... but the picture is bigger than I wanted it to be..... but I can't figure that out either.  I need a blogger for dummies book.

   Next a new chip-in!

**ok, update......   got the picture smaller, not can't figure out how to center it!  I give up!!  goin' to bed.

October 4, 2011

Nevin has been invited to speak as a self-advocate and also to talk a little about Reece's Rainbow.  Yikes!! don't they know it makes me terribly nervous when people give Nevin license to speak to a large group :)  You never know what he is going to say.   AND...... this is a large group of people (expecting 700 people!!) who will probably understand what he says!!   :D

and.......  guess where we went this last weekend!!  
the Omaha Zoo and the Strategic Air and Space Museum!   what fun!    
here is few teaser pictures........... more to come!

October 1, 2011

Bumper Stickers!!

We have a new bumper sticker!! we will be selling both of them to benefit Reece's Rainbow at our Buddy Walk on Saturday, October 8th!!  I will also be adding a chip-in so that you can get bumper stickers via a direct online donation.
    however.........  I'm currently in process of trying to figure out how to add tabs, do a new chip-in, etc. for the bumper stickers.   Soooo........   coming soon!!    or  maybe we'll see you at the buddy walk!!